I’m on a mission now…

This has been a busy week.  Chris had a Remicade treatment on Wednesday.  That was the main event of the week.  The doctor added a steriod to his medication.  He has been off Prednisone for a while and it was a real bummer that he has to go back on it.  The side effects are ridiculous but least it gives him and appetite and helps him eat. 

When we got home I was going through his medication and seeing what refills he needed.  There is always something to be refilled.  Even tho we have insurance, the copays of $30 ($60 on one) each can add up every month.  I sat there just staring at the medication.  18 pills a day at least! And that is on a good pain day.  Somedays he needs more pain medication.  How does he do it? He strength astounds me.  I can’t say he does it without complaint, because come on now, he IS a MAN.  But who wouldn’t complain in his situation? You’d probably have to hospitalize me because I’d have a breakdown daily. 

Crohns disease affects our life so much.  Not just his, although he is the one to feel the pain of it.  But the whole family.  I know I have a lot on me already but I still feel like I don’t do enough.  I feel like I could do something to help make a difference in our life and the lives of others with Crohns.  So after we get back from the beach I’m gonna find a way to give back.  Find a way to raise awareness in my community for Crohns.  Get off my butt and start trying to make a difference and help fund research.  My husband deserves to be able to live a more quality life.   Allison and Kelsey deserve to have the father around to watch them grow up and start families of their own.  My future grandchildren deserve to know their grandpa.

From now on my blog may have a lot more about Crohn’s and I may ask for your help from time to time.  You guys are such great friends and have been there for me through some tough times and I am so grateful for that. 

Have a great weekend….